{I originally started this post at least one month [scratch that] three months [scratch that too] ten months ago. Regardless, it has been an
array of emotions since it was started.}
At the beginning of November, the first to be exact, Pa went to
the hospital in kidney failure. Before they could make a plan about his
kidneys, they said they needed to put in a pacemaker since his heart stopped
twice the night before and started again on its own. Before I could get to
Enid, he had a pacemaker and was on the mend. He was kind of loopy when I got
there and started telling me about the papers in the safe and his regular run
down of where I could find things. He went in on Friday and had the pacemaker
put in on Saturday. By Sunday the nephrologist told me her recommendation was
to call in hospice. She thought the rigor of dialysis would do him in. This was
a lot for me to take in. I mean, earlier in the day, my dad and I were looking
at a new dishwasher for their house. I was also under the impression that the
doctor had already had this conversation with him so I went to the hospital
prepared to discuss what we would do next.
We sat and chatted and nothing was mentioned about hospice, which
come to find out the doctor hadn't told him, she wanted to prepare the family
first. I took off work Monday so I could talk to his PCP about his thoughts of
after care. I was thinking his primary physician would have a discussion with
him Monday morning about the prognosis of his kidneys...but alas he did not. So
I left messages for the doctor to call me, the ICU nurses left messages for the
doctor to call them but he wasn't returning any of those. After later speaking
to a sweet nurse from Pa's oncologist, who ended up telling him there really
wasn't anything they could do to help his kidneys, I took myself to the
doctor's office and sat in his waiting room until he would see me. You see, I
didn't take off of work, and couldn't keep taking off, to not get any answers,
so I wasn't leaving without answers. From body language, I could tell his
office staff did not think too highly of me just showing up and asking to speak
to the doctor. One thing I overheard was, "that just isn't how things work
around here." Well, it worked crabby office lady. His prognosis of 6-8
months was quite different than the nephrologists of 6-8 weeks.
I then returned to the hospital where Pa and I further discussed
after care. He asked me if PCP doctor had told me the prognosis and I said the
nephrologist had. Being a man of truthful words, he had some good ones about
the PCP and not being honest with him. After tears, doubt, and reassuring, we
decided it would be best for them both to move my direction into a nursing home
so Nandy and Pa could be together until Pa's kidneys quit. His biggest concern
was that Nandy get settled before something happened to him. He didn’t care
that his body was calling it in. He cared that his girlfriend was taken care
of.
One of the most heart breaking things I've seen is my Pa telling
Nandy that his kidneys are not working anymore and that they will be moving to
a nursing home together near me. Her dementia is far enough along that her only
response was, "Okay. I'll go wherever with you." Amidst the tears, he
assured her he would stay with her as long as he could. He didn't care that he
was dying, he cared that he felt like he was leaving his girlfriend, letting
her down and not taking care of her. After my Dad left to take Nandy back to
the house, I assured Pa that he was in fact taking care of her. Helping make
the decision to move was going to get her settled in before the inevitable
happened.
I was then instructed to go the house and tell Nandy's sister, who
had been staying with Nandy while Pa was in the hospital. Then I headed back
home because I had some nursing home research to do. I went to work Tuesday
morning just because I needed a little bit of normal...hard to think that 20
kindergartners were what was going to give me normal. By 10:30, I had called my
sub to see if she could come in for the afternoon. My mind was all over the
place but I knew it needed to be making phone calls so Mrs. Chambers to the
rescue! I had asked around for nursing homes that people knew of and spent the
afternoon calling about 10 places. From noon to 4:00, I did nothing but call,
take notes, research online and wait for people to return my call.
That afternoon, my sweet PE teacher went with me, in the rain, to
visit two nursing homes in Sapulpa. If someone had not seen us walk into the
first one, I would have turned around and left based on smell alone. We went
ahead and had a quick tour by a sweet lady that was actually on her way out. I
was not impressed in any way with what I saw. The smell did get better but
maybe my nose just got used to it? You know that feeling you have after going
to a bar? You know, where your hair and clothes stink like the bar? We had that
feeling after leaving. I don't think we actually smelled bad but it was not
good. I was brave enough to ask her if she would go to one more with me and she
agreed. The second one was better the moment we walked in. We were toured
through the place by the night nurse. She seemed very knowledgeable about the
facility as well as the residents. She spoke to many of them by name as we
passed and didn't seem the least bit worried we would see something out of the
ordinary. There was no rancid old person smell either. This facility was
recommended to me by a co-worker that had her mother there recently.
After leaving, I knew where I would choose if there were only two
options. I went back to school and prepared sub plans for Wednesday since I
called in so that I could go visit some more nursing homes. Sweet Miss Maxwell
stayed at school with me until my plans were ready and even offered to take
part of the following day off to go with to more places. Wednesday morning, I
toured a place in Sand Springs. They have a specific building for memory care
patients, which Nandy may need some day. The ladies I spoke to were nice and
knowledgeable about the facility.
The plan was that Maxwell was a cousin but I always goofed it up
by saying my grandparents. It really
turned out that I had all the questions and she was there for moral support.
She mentioned feeling silly just being there but I kept saying my and blowing our cover. I am very
grateful that she went with me. Not too many friends will volunteer to visit
nursing homes with people. It's not like it is the most fun thing to do with your
time let alone take off work for. She helped to make it a more fun experience than it truly is. I’d recommend
her company any day!
In the afternoon, I picked Maxwell up and we went to two other
places. One in Jenks that actually had a pre-k and kindergarten class at it. It
was really neat to see the kids out interacting with the residents. Some of the
little old ladies were out chatting with the kids and having ice cream with them.
The man that took us on a tour of the place did not seem to take me seriously.
I felt like he thought I was there for shits and giggles. He told me they
currently did not a have room that would accommodate both of my grandparents
but they could still be in the same building. Being roommates was one of the
criteria that I had to have, after all, the point of moving was so they could
be together. Neither one of us were impressed with his demeanor. I felt rushed
and I didn't feel like he was really that interested in selling me on the
place.
At our next stop, I felt less than impressed when I walked in but
was told they had a nice memory unit. We were greeted by a little old man that
was very heavy in passing out compliments. So if you want at boost in your
attitude… stop on by! The lady we talked to was very nice. She took us through
the facility but as I looked around I wasn't impressed. To me, it almost seemed
like the family members of the residents didn't care about the surroundings.
Many of the rooms were bare, as if they didn't care to try and make this home
for their family. Then she took us to the lock down, memory unit. You also may
refer to it as the crazy house. People trying to get out as you come in, a lady
following you around saying "didididididi" carrying a doll. There was
nothing on the cement walls of the rooms. It almost reminded me of a jail cell.
There is no way my grandma would fit in there and Pa would tell me I was
"bat shit crazy" if I tried to move them in there. I envisioned him
telling me he would walk back to Enid before spending a night there.
On the way back to get Kinley, we stopped at the place I had a
morning visit with. Their facility is locked down but not to the extent of the
previous. It is a newer place where it was obvious the families wanted it to
seem like home. We checked in at the main place and they told us to go over and
someone would come show us around. We rang the bell but no one came to the
door, except the visiting wife of a resident. She happily let us in so I walked
Maxwell through. We made it through the entire facility without being spoken to
by a worker. Heck, we didn't even see anyone that worked there. Talked to a
couple old ladies that were just sitting out in the common area but no workers
were to be seen. It wasn't until we were leaving and chatted with the wife
about her experience there that someone approached us. That alone did not
really sit well with me.
So back to the school we went. Visited with a few people there and
tried to feel okay with a huge decision. I mean, my Pa trusted me to pick a
place for them to live. I had earlier talked to my Dad. He informed me that he
set up an appointment for the dog to go to the groomer. Why couldn’t I have had
that job??? Why did I have to make the nursing home decision?! I went back and
forth on feeling confident about my decision. What if I got them there and Pa
hated it? What if Nandy hated it? What if Pa changed his mind about moving? [insert
bad dreams about all this] What if? What if? What if?
Snap out of it, you are 31 years old making the best decision you know
how to in this situation. But so much is weighing on your shoulders… A place
needed to be decided on and it was a relief to make it but also daunting. The ‘what
ifs’ came back but only time would tell.
The next task was getting Pa out of the hospital and getting both
of them brought over to Sapulpa. Hubby went to Enid on the 13th,
with my brother and niece in tow. Three people (Hubby, Dad and Brother) were
told they needed to be at the nursing home by 2:00 (really the deadline was
3:00 but I know my Dad and Brother so I fibbed) so that there was more staff
available to get them settled and checked out. 1:30 p.m. I get a text from
Hubby that they are backing out of the driveway. Now, do some math with me…. it
takes 90 minutes to drive there. Nevermind, you know they did not make it by
the 2:00 deadline or even 3:00. I get out of school at 4:00 and got there right
as they were getting out of the car.
It took some time for them to adjust. Pa sat and worried about money, the car, the house, Nandy, and the baby and I. Money, the car, and the house were the least of my worries. I just wanted my grandparents to be together. To get settled and feel comfortable for what time they did have left... together.
After about 8 days in their new place, Pa told me, "I think you did good, kid." What a relief! That is what I worried about! I wondered but didn't want to ask (for fear of the answer) if Pa approved of the place that I had chosen. You know, those 'what if's' I mentioned earlier. Just hearing that gave me some peace of mind.
I feel very fortunate to have been able to spend so much more time with my grandparents once they were moved over here. Kinley and I would go visit after school, almost everyday, depending on our schedule. Nandy and Pa would both get so excited to see her come in. I brought forth a little excitement but it was really all for Kinley, which is sweet to see how much they love her.
It took some time for them to adjust. Pa sat and worried about money, the car, the house, Nandy, and the baby and I. Money, the car, and the house were the least of my worries. I just wanted my grandparents to be together. To get settled and feel comfortable for what time they did have left... together.
After about 8 days in their new place, Pa told me, "I think you did good, kid." What a relief! That is what I worried about! I wondered but didn't want to ask (for fear of the answer) if Pa approved of the place that I had chosen. You know, those 'what if's' I mentioned earlier. Just hearing that gave me some peace of mind.
I feel very fortunate to have been able to spend so much more time with my grandparents once they were moved over here. Kinley and I would go visit after school, almost everyday, depending on our schedule. Nandy and Pa would both get so excited to see her come in. I brought forth a little excitement but it was really all for Kinley, which is sweet to see how much they love her.